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    • Co-creating an ethical framework for social media use in prevention trials
    • IMPACT
    • First Link® Evaluation Project
  • PEOPLE
  • PUBLICATIONS
  • GET INVOLVED
DR. JULIE ROBILLARD
  • HOME
  • RESEARCH
    • SIDEKICK
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    • Co-creating an ethical framework for social media use in prevention trials
    • IMPACT
    • First Link® Evaluation Project
  • PEOPLE
  • PUBLICATIONS
  • GET INVOLVED

Co-creating an ethical framework for social media use in prevention trials

Our research team will co-create guidelines that address the risks and benefits of social media use in dementia research. Our goal is to help researchers and participants connect on social media in a way that is ethical and beneficial for all.

Why is this research important?

Dementia research is still receiving limited engagement and low enrolment numbers, especially in diverse populations. Social media offers new ways to overcome geographical and financial barriers and can increase awareness of important dementia research. 

The aim of this research study is to co-create practical guidelines for researchers using social media in prevention trials.

We are recruiting!

Who can participate?

  • People with lived experiences of dementia and care partners
  • Researchers or experts working in dementia research
  • People interested in dementia prevention research and social media
  • We encourage the participation of Black, Indigenous, and racialized communities; LGBTQIA2S+ communities, and persons with disabilities

International participants are welcome!

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What does the study involve?

The study involves three online surveys and three conference calls to assess factors related to ethical social media use in dementia prevention research. You do not need to have any experience with social media to participate.
 
Participants can receive an honorarium for their time.
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To participate:

For more information about the study or to arrange for your participation, please contact Viorica Hrincu at viorica.hrincu@ubc.ca​.

Publications & Media

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Publication | Dementia Research on Facebook and Twitter: Current Practice and Challenges

Team Members

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Dr. Julie Robillard
​Principal Investigator
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Viorica Hrincu
​PhD Trainee
Co-Investigators: 
Dr. Serge Gauthier
Dr. Matthew Lariviere
Dr. Richard Milne
​Dr. Ara Khachaturian
Dr. Kenneth Joseph
Zijian An

Collaborators & Funders

​Research Collaborators
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Funders
We are proud to have received funding for this project from the following organizations:
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CONTACT

Address: B402-4480 Oak Street, Vancouver, BC V6H 3N1, Canada  |  Phone: (604) 875-3923  |  Email: jrobilla@mail.ubc.ca
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​© 2023 THE NEUROSCIENCE, ENGAGEMENT, AND SMART TECH LAB

  • HOME
  • RESEARCH
    • SIDEKICK
    • RECESS
    • COMFORT
    • DISRUPT
    • Co-creating an ethical framework for social media use in prevention trials
    • IMPACT
    • First Link® Evaluation Project
  • PEOPLE
  • PUBLICATIONS
  • GET INVOLVED