Co-creating an ethical framework for social media use in prevention trials

Our research team will co-create guidelines that address the risks and benefits of social media use in dementia research. Our goal is to help researchers and participants connect on social media in a way that is ethical and beneficial for all.

Why is this research important?

Dementia research is still receiving limited engagement and low enrolment numbers, especially in diverse populations. Social media offers new ways to overcome geographical and financial barriers and can increase awareness of important dementia research.

The aim of this research study is to co-create practical guidelines for researchers using social media in prevention trials.

We are recruiting!

Who can participate?

People with lived experiences of dementia and care partners
Researchers or experts working in dementia research
People interested in dementia prevention research and social media
We encourage the participation of Black, Indigenous, and racialized communities; LGBTQIA2S+ communities, and persons with disabilities

International participants are welcome!

What does the study involve?

The study involves three online surveys and three conference calls to assess factors related to ethical social media use in dementia prevention research. You do not need to have any experience with social media to participate.

Participants can receive an honorarium for their time.

To participate:

For more information about the study or to arrange for your participation, please contact Viorica Hrincu at viorica.hrincu@ubc.ca.