Diversifying Research through the Experiences and Attitudes of Minorities (DREAM)

In this project we explore the helpfulness and feasibility of published recommendations for enhancing diversity within dementia research. 

Why is this research important?

The DREAM survey aims to capture the voices of under-served groups in dementia research to produce meaningful insights around the barriers and motivators to participation in dementia research studies.

Results will be used to inform the future development of recommendations and strategies that enhance diversity in dementia research.

Participation

​Who can participate?

• Persons involved in dementia research or services OR from an underserved group* in dementia research.
• Persons able to complete the web-based survey in one of the following languages: English, French, Chinese (simplified), Punjabi, Inuktitut.

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*Underserved groups in dementia research include:
Racial/ethnic minorities (i.e., South Asian, Chinese, Black, Filipino, Arab, Latin American, Southeast Asian, West Asian, Korean, Japanese, or other racial/ethnic minority) Indigenous populations (i.e., First Nations, Inuit, Métis, or other Indigenous group), Sexual/gender minorities (i.e., the LGBTQ2S+ community), Individuals living in rural and/or remote communities, Individuals living with a disability, Individuals with low social and economic conditions.

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What does the study involve?
A short 30-minute online survey, asking whether recommendations to improve diversity in dementia research are helpful and/or feasible.
 

​Take the survey here
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https://ubc.ca1.qualtrics.com/jfe/form/SV_7VyjjwgT8eoTeYe

Team Members

Dr. Julie Robillard
​Principal Investigator

Susanna Martin
​​Research Assistant

​Mahala English 
​Undergraduate Research Assistant

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Funders

The DREAM survey is part of our ongoing work at the Ethical, Legal and Social Implications (ELSI) team at the Canadian Consortium on Neurodegeneration in Aging (CCNA).
 
Find out more about the ELSI here  https://ccna-ccnv.ca/ethical-legal-social-issues-elsi/
 
Watch our recent webinar about diversity in dementia research here https://ccna-ccnv.ca/talking-brains-series/